🌈 Life is colourful – and so are we!
Today is International Rare Disease Day. People living with rare diseases face many challenges in everyday life that often remain invisible. Their needs are diverse, access to specialised medical care is often limited, and treatment options are restricted. At the same time, there is still a lack of societal understanding of the impact of rare and chronic illnesses – both in private life and in the workplace.
That’s why raising awareness is crucial!
We at the Association for Angiodysplasia Switzerland are affected ourselves and know these daily challenges all too well. This is why we advocate for better medical care, more research, and stronger recognition of the needs of people living with rare diseases. Only through visibility, exchange, and joint commitment can we achieve lasting change.
🌍 Tomorrow we’ll be in Lucerne!
And yes — tomorrow we will be in Lucerne on this special occasion to officially present our association and inaugurate our very first information stand. We will be there to listen, to share personal stories, to provide information, and to stand up together for the rights and individual treatment needs of those affected.
🔹 Will you stop by as well? We’re looking forward to organisations such as ProRaris, Rare Disease Action Forum, inspiring conversations, delicious coffee, and meaningful encounters.
You can also find more information on our LinkedIn page.