The Invisible Infrastructure of Care
What a new database on rare diseases reveals – and why patients still have to bridge the gaps between medical […]
Impressions and insights from the 13th European Conference on Rare Diseases and Orphan Products (ECRD 2026)
Event: European Conference on Rare Diseases & Orphan Products (ECRD 2026)Place & date: O2 Universum, Prague & online, 3–4 June
Travelling with SBB: Dealing with invisible disabilities on public transport and fostering greater understanding through small gestures
At all SBB travel centres, you can now pick up a lanyard with a card for “hidden disabilities”. The Hidden
Swiss VASC-RN: An important step – and a major challenge
In February 2026, kosek – the National Coordination for Rare Diseases – officially recognized a total of 42 reference centres
A successful day dedicated to collaboration
Once again, our association was represented at Rare Disease Day, this time in Bellinzona in beautiful spring weather. The conference
Swiss Patient Forum 2026
On 13 February 2026, I took part in the Swiss Patient Forum 2026 at Hotel Ador in Bern as a
Rare Disease Day 2026
Rare Disease Day 2026 – Strengthening Collaboration On 27 February 2026, the Swiss Angiodysplasia Association will take part in the
General Assembly on 11 January 2026 in Olten
A motivating start to the new year On January 11, 2026, we met at the Flörli in Olten for our
Multilingual Website
Vascular malformations affect people throughout Switzerland. Patient care also takes place in specialized centers across language borders. Our association was
Statement on the BSKG
Statement by the Angiodysplasia Association Switzerland on the Federal Act on Measures to Combat Rare Diseases (BSKG) As an association