“I have a rare vascular disease”
Corinne (36) has been affected since birth by Klippel–Trénaunay–Weber syndrome. This chronic vascular condition mainly affects her right leg and led to her needing to use a wheelchair at the age of 29.
Morning Buddy
The “Morning Buddy” format provides a weekly podcast or report covering many facets of living with a chronic or rare condition.
Too mobile for Nottwil
Imagine not being able to feel the grass under your feet tomorrow—the tickle, the slight dampness, the pressure of the ground. That happened to me: a young, physically fit woman. From one day to the next. Unbelievable? Yes. I had to learn the hard way that being “healthy” is not something to be taken for granted.
Sharing and coping
Under the hashtag #chronicillness, Instagram has over five million posts. Many—often young—people share their limitations or illnesses and raise awareness. At the same time, many find it hard to understand chronic and rare conditions. Medical treatment options are often limited, and individual needs can be challenging—both in private life and at work.