For the first time, Angiodysplasia Switzerland took part in the “Rare Disease Day” at the Lucerne Cantonal Hospital – and it was an incredibly enriching experience! 💛 🫂
A huge thank you to Pro Raris for the excellent organisation of this special event, and for the many important and personal contributions by Yvonne Feri, Johannes Roth, Michaela Tschuor, Konrad Imhof, Roger René Müller, Martin Knoblauch and Oliver Menzel.
It was truly inspiring to see how many people are passionately committed to supporting rare and very rare diseases. The energy, dedication and solidarity that could be felt throughout the day deeply impressed us.
We – Werner Kratz, Liane Kirchner and Corinne Blatter – had the opportunity to engage in many inspiring conversations, establish valuable new connections and take home numerous impulses for our future work. The event once again highlighted how crucial networking, exchange and joint commitment are in driving sustainable change.
We may be “rare, but not alone” – and that is exactly why we will continue to advocate for greater visibility and support. We are already looking forward to the next occasion and to raising our collective voice even louder for those affected!