What does it take for patients to have a real say in the healthcare system? Insights from the RDAF workshop at Lucerne Cantonal Hospital – from funding patient organisations to anchoring participation in law.
How can complex vascular malformations be treated more precisely today? A patient’s impressions of the specialist event on bleomycin electrosclerotherapy (BEST) and electroembolotherapy (BEET) in Rosenheim.
More than 7,000 rare diseases and, on average, over five years to a diagnosis: the 1st DACH Congress in Innsbruck showed how genetic testing and cross-border collaboration can shorten the diagnostic odyssey.
On 10 January 2025, the Swiss Angiodysplasia Association was founded in Zurich. The assembly approved the statutes, elected the first board and decided to join ProRaris, the Rare Disease Action Forum and EURORDIS.