The medicine is the same, the system around it is not. We show where Switzerland and Germany differ for people with congenital vascular malformations – from the deductible to the Disability Insurance to treatment abroad
At the 7th DiGGefa annual meeting in Freiburg, radiology, paediatric surgery, genetics and psychosocial care came together at one table – with patient organisations right in the middle. What we are taking home for networking among Swiss centres.
A new database of more than 1,100 clinical recommendations for heritable connective tissue disorders shows how fragmented care is across specialties. What a poster at ECRD 2026 tells us about care for vascular malformations in Switzerland.
At ECRD 2026 in Prague, the European Blueprint for Rare Diseases took centre stage. Our key insights – from holistic care to mental health – and what they mean for Switzerland.
kosek has officially recognised Swiss VASC-RN for rare multisystemic vascular diseases. An important step – but care will only improve once it becomes a network that truly works, nationally and internationally.
How can co-creation with patients succeed in research and healthcare? Impressions from the Swiss Patient Forum 2026 in Bern – and why the lived experience of those affected is genuine expertise.
On 27 February 2026, we will have our own stand at the national conference in Bellinzona. The theme of “collaboration” is exactly what we stand for: across specialties and on an equal footing with those affected.
At our first ordinary general assembly in Olten, we looked back on a year of growth – from three to ten members. We also elected two new board members and set our goals for 2026.
Vascular malformations know no language borders – and from now on, neither does our website. It is now available in German, French, Italian and English.
The Swiss Angiodysplasia Association welcomes the planned Federal Act on Rare Diseases (BSKG). In our statement, we argue for a publicly accessible data catalogue and special protection for sensitive images and medical findings.